Treatment:
- Drink lots of water! - flush out unwanted particles (ie: bacteria)
- Alternate (every 20 min) between hot an cold packs applied to perineum (women: between anus and vagina, men: between anus and base of penis). I also apply the packs to my urethra as well as I tend to have a lot of urethral spasms.
- mix 1 tsp of baking soda in a large glass of water to decrease alkalinity in bladder.
- Ask doc for pyridium: its an analgesic that numbs the bladder thus decreasing pain from bladder spasms (it turns your urine a bright orange, don't wear any underwear that you don't mind being stained, sticking with black cotton might be a good idea).
- Squatting can help relax pelvic muscles.
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Prevention:
- Activities such as running, sitting for a prolonged period of time, riding a bike, and sexual activity can irritate the bladder/urethra. Yoga, pilates, lifting weights, working at a standing desk, and walking may be less irritating.
- Sex: shower both before and after sex to ensure unwanted particles do not enter the urinary tract, also pee immediately after sex (drink water right before sex to ensure you have something to pee out afterwards).
- Menstruation: Some women find that the chemicals in pads can cause urethral irritation, Always Infinity pads and liners have been reported to bother some IC sufferers. Instead try Seventh Generation pads and liners. They are chlorine free (free of almost all chemicals in fact) and you can find this brand at super store and extra foods in the natural section.
- Stay well hydrated: find a water bottle you like (stainless steel and glass are best for not shedding particles of the bottles into water over time) and take it with you everywhere. Avoid caffienated beverages and excessive alcohol. If you are not experiencing a flare and want your cup of coffee try finding a low-acid coffee (puroast - on amazon.com, among others).
- Yoga/Meditation: these will help you stay relaxed which reduces your body's flare reaction. Take time out for your self on a regular basis.
- Clothing: avoid tight fitting clothes, especially jeans, and stick to cotton panties (avoid thongs as they transmit bacteria from anus to urethra easily).
- Food: avoid food high in acidity. (specifics discussed in other posts).
Interstitial cystitis (IC) is a type of painful bladder disorder that results in part from ulcerations in the bladder lining and from muscle spasm in the bladder and surrounding area. Although there is no cure for IC as of March 2010, ongoing research had led to numerous new treatments to control IC symptoms. Botox, otherwise known as botulinum toxin and derived from a clostridium bacteria, is an FDA-approved, injected drug that paralyzes muscle. Botox is being studied as a treatment to prevent bladder pain associated with IC.
BOTOX MECHANISM
Botox is a muscle paralyzer and causes muscle relaxation because it prevents chemical activity at nerve-muscle connections in the body. Although pain from IC is possibly caused by acidic foods and irritants in the urine, the symptoms of muscle pain, frequency and urgency are also related to overactive muscle spasms of the bladder. Dr. R. Pinto, et al., reported in European Urology in March 2010 that forced paralysis of the lower bladder wall, the trigone, in particular, with Botox provides direct and lasting improvement of up to nine months in muscle-related symptoms
INJECTION SCHEDULE
In ongoing 2010 studies, 100 units of Botox were injected in different amounts throughout the bladder. In the European Urology study, for example, 10 injections of 10 units each in 1 ml of liquid were injected at a single visit. An ongoing study by the University of Washington is instead providing injections of 25 units to four different parts of the bladder at a single visit. More research is needed to identify the best dose and schedule for injected Botox.
INJECTION LOCATIONS
Use of Botox is still so new in patients with IC that the most appropriate injection location has not been determined. Although the study by Dr. Pinto focused directly on the bottom of the bladder, other research is focusing on areas of the bladder that are specific to individuals. Patients with IC often determine the bladder lining sites of greatest pain during a bladder exam, and Botox might be most useful at these locations. Conversely, treatment directly to the trigone, or bladder bottom, has been proven to improve frequency, urgency and pain.
